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Tired of this disease.

I hate diabetes. I hate it with more hatred than I have ever felt in my entire life.

Diabetes has taken a friend away from us recently. His fight against the disease was all-consuming, requiring horrible sacrifices, bending of will and dignity, and in the end requiring organ transplants to provide hope for a normal life. Unfortunately, his battle was lost, and we in turn lost an amazing man. RIP Flagg.

Diabetes almost took my father away from us. Over 3 years ago, he was sent to the hospital feverish and dizzy. We discovered that an infected diabetic tumor in his left leg had cause his system to go septic. He was given a 50% shot to live through that night, and a 10% chance to keep his leg thereafter. It was eerily similar to Flagg's battle. My father fought, suffered, and lived through a horrible 2 and a half year battle to keep his leg. 2 long stays at rehab centers filled with the invalid and those whose minds have departed. Living in places where people are sent to die, and expected to maintain his humor and his will to live. My father on several occasions seemed ready to throw it all away, to give up... but in the end he was a lucky one, and is now driving and walking on two legs, and is over a 100 pounds lighter than when we started.

Diabetes is contributing to the struggle of another friend to the community as we speak. A legend in the scene, Mr. Marcus, is lying sick in San Francisco, fighting to continue living.

I hate diabetes. I hate that this subversive disease has caused so much struggling, so much agony. I hate that we lost Flagg, I hate that it reminds me how close I was to losing my own father, I hate to think that we will lose a man like Mr. Marcus, who was so sweet to me everytime he saw me.

I am donating to the American Diabetes Foundation right now. This disease needs to end. I need to stop fighting the need to cry. Please join me.


( 15 comments — Leave a comment )
Oct. 7th, 2009 02:36 pm (UTC)
I hate it too! Especially that I will with almost 100% certainty have it one day.
Oct. 8th, 2009 04:09 am (UTC)
ditto for me
Oct. 7th, 2009 02:47 pm (UTC)
I have a particular hatred of this disease... 3 of my loved ones have it. kudos to you for taking a step to Do something about it. :)
Oct. 7th, 2009 02:56 pm (UTC)
I too have diabetes and it totally sucks..

Thank you for this post.
Oct. 7th, 2009 03:51 pm (UTC)
Jan has it too, and is on like 6 shots a day now. I totally understand and am sorry you're hurting. xox
Oct. 7th, 2009 04:28 pm (UTC)
Morgan has it and before she realized it was already wreaking havoc with her health.
It's very important to keep on top of Diabetes. I really wish Flagg had taken better care of himself, things may have turned out very differently.
Oct. 7th, 2009 05:08 pm (UTC)
good for you for doing good *pats on the back* and *hugs*
Oct. 7th, 2009 06:03 pm (UTC)
My stepdad recently got diagnosed with diabetes, and I'm not sure how much he's doing about it, which worries me to death.

I feel about cancer the way you feel about diabetes. Rage, hatred, murderous thoughts against it. It's taken far too many people from me and the people I love, and even those it let survive were never the same afterwards.
Oct. 7th, 2009 06:45 pm (UTC)
A group of us from The Citadel here in SF raised about $8000 for diabetes this year. Needless to say, we echo your feelings on the disease.
Oct. 7th, 2009 07:16 pm (UTC)
I lost my grandmother to diabetes. She died when I was 6 months old, and my only memory of her is the strange feeling of being held and very small. I honestly don't have the words to describe my anger at this disease that took away the one grandmother I had the privledge to know in my lifetime. I lost the rest of my grandparents to cancer. Another disease I hate with a passion.
Oct. 7th, 2009 07:42 pm (UTC)
The sad thing is, unless you are really, really sick and go on public assistance because you are disabled, insurance companies are paying less and less for care.

My test strips are no longer covered.
My insurance won't pay for my A1C more than once a year, even though the American Diabetes Association recommends at least twice a year.
My medication is reimbursed at about 15%

The worst part, is my previous insurance company paid for visits with a nutritionist and other educational activities that educate people about their disease and ultimately bring the cost of caring for patients down.

This company - nope - not a thing. Even though preventative care and education ultimately reduce the cost of future treatment, they won't even make those resources available to their subscribers.

Oct. 8th, 2009 01:32 am (UTC)
I had no idea about Mr. Marcus. He was always awesome to me when I used to run into him at events.

I had heard about Flagg, and am sad.

Edited at 2009-10-08 01:32 am (UTC)
Oct. 8th, 2009 04:12 am (UTC)
My father has had it for most of my life, it's shortened his life and robbed him of many things. ?It still affect his health as a few weeks ago he almost died because the hospital could not do something with his heart because of it.

A cousin of mine has it, my brother is borderline, many friends of mine have it. It is probable I'll have it one day.

We need to solve this problem.
Oct. 8th, 2009 04:31 am (UTC)
Oh that hit close to home. My grandpa (the one who raised me and who was basically a real father to me) has it. His father died from it - developed gangrene in his leg; couldn't have it amputated because his heart was weak and wouldn't survive the operation. This is what grandpa could be facing and is scared of (even though he doesn't show it) - he developed it at about the same age, found out a couple of years ago, and he also has heart problems. My mom and grandmother take care of him, make sure he visits the doctor and eats well, but I'm still concerned about the medical options available, whether something more could be done, and stressing over the fact that he's all the way across the Atlantic. Should I try to visit more often, finances and work be damned? Should I try to research diabetes, see if there are better treatment options in other clinics, elsewhere, and pay for that? I already feel wretched that we lost the closeness we had because of my move, because I'm not great with nurturing long-distance relationships, and because we drifted apart culturally. Health scares make me feel even more helpless and devastated. I just don't know what to do.

My great-grandmother also had it, although she developed it even later in life and died in her 90s. She was very active, even in her last years, taking care of a large family relocated to Israel. One of the warmest, kindest people I've met anywhere, definitely in my family tree. I wish I had a chance to really talk to her when I was older and could appreciate her stories. I suppose living into your 90s is pretty damn good, so I can't complain..

Sorry for dumping this onto your journal, am slightly tipsy and melancholy, and you brought up just the right subject.
Oct. 13th, 2009 01:50 am (UTC)
Help stop this disease!
I will be walking in the local (to me anyway: Denver, CO) American Diabetes Association: Step Out: Walk to Fight Diabetes on Oct. 24th.

If you would like to donate to the American Diabetes Association, this is a great way to do it.

I also have a special offer for anyone who would like to donate in memorium or support of a friend or family member (or Leather family member!). Please see all the details on My Walk Page.

Please feel free to pass this on to anyone who might be interested. Thank You.
( 15 comments — Leave a comment )